Retain or Refrain? Today Autism... I hate you.

Woah. The entire month of February got by me and all I could squeak out was one measly blog post? Well, not that I owe anyone an apology, but honestly I wish I had written more. So I guess all I can say is I'll try to do better this month. Last month was not the best in the world in my book. I lost my grandmother, I have a few other personal things going on and I have been working a lot lately. But the work is a great thing! I really enjoy my job, love the people I work with and I am grateful for the opportunity to learn and retain so many new things along the way. 

Which brings me to that word.... retain. As we all learn things, we retain the things we learn right? Or at least we retain bits and pieces and maybe after a second run through we retain even more, well hopefully. The point is we learn. We learn when we are babies, we learn when we are kids and we learn as adults. Heck, we even learn when we are old. And all those things we learn give us the knowledge and empowerment to pass down all the information we have retained over the years to our kids, grandkids, friends and sometimes even strangers. 

Knowledge is power, but retaining knowledge is most often easier said than done. So easily are we distracted by the television, the text message on our phones, kids running rampant through the house, the dogs barking at nothing but their own shadow. Even in the most absolute silence, it can still be hard to learn new things. It takes focus, time and dedication to the task at hand. I'm not going to promise I was the best at any reading comprehension test in school and that even now I still have to read things two or three times before it really sinks in. (don't lie, you know you have to too) But at some point I do learn. I don't give up and I keep going until I feel that I have accomplished what I wanted to. That's easy for me to say. 

What's not easy for me to admit is that damn (excuse me, I'm a little angry tonight) word... that stupid scarlet letter "A" word is like a freaking curse on the retention meter. Today. Right now. I HATE YOU AUTISM. How dare you. How dare you keep my sweet Jackson from being able to learn. How dare you make it so hard for him. (Yeah, this would be one of those pity party, feel sorry for myself posts so read on or don't - I have to get all this out) How dare you always rear your ugly head and make him struggle. 

Simple words that he should be able to somewhat easy for him retain by now. Words that come home every week. The same words with only one or two added each week. Shouldn't be too hard right? Well it is. It's painful. It's a struggle. It's an all out WAR just to get through that list some days. And you wanna know the crappy part? It's like the refrain of a song. See that's the part of the song that you always remember, the part you retain and why? Because it's repeated over and over and so you remembering the refrain is just easier. Sure you can fake it and mumble through the verse. But when the refrain comes on, it's like a full on concert and you know every word. That's how Jackson retains these words. They have repeated themselves so many times that of course he remembers. As long as they go the same way, every time. Just like the refrain. So really, is that learning? Nope. That's called the refrain. Memorizing the word list in the order that they come home in the same folder the same printed way, and that's how he knows them. But did he really retain them? Nope. Mix them up and mess up that "refrain" order and he barely makes it through the list with heavy coaching and a LOT of patience.

I sat and watched my husband trying to help my son tonight. I sat and watched Jackson struggle, but John too. The fact that Jackson has ADHD doesn't help us on the focus meter either, but watching two people you love both struggle in two completely different and heartbreaking ways is seriously misery. I know that children with autism struggle. I know that being autistic presents it's challenges in so many environments and in so many ways. What I wouldn't give to see the world through Jackson's eyes just for one day. To know what it's like to see things the way he does. I can't even begin to wrap my head around that.  Then to see my husband. To see him struggle with frustration. To see it in his eyes that he too is heartbroken that it's so hard for Jackson and right now it feels like there is NOTHING we can do to change any of that in this moment. John would and will never give up on Jackson, but tonight he had to just walk away. And I know he walked away because it is frustrating. But I also know he didn't want to take that frustration out on Jackson. I don't blame him at all. I think he did the right thing actually. Sometimes its better to walk away and just let your other half take over, because as parents, we too can become overwhelmed. We are also not alone, so I could tell John was leaning on me to take over, so I did.

Yes, I am angry. Yes, I am frustrated. Yes, this is one of those days, that I can't take much more. I just want to punch something. I want to take all my anger and frustration out. Out on anything but Jackson. I just have to get all of this off my chest today. I never promised that all our days would smell like roses. In fact, today just stinks. In all my positive hopes and dreams for Jackson, there will come some struggle. Unfortunately this is one of the days that is not easy. I know things will get better and I do try to stay positive 99.9% of the time, but today I am taking the .01% to put out there that every single day is a fight. A fight for a better tomorrow. And though maybe today is getting the best of me, it's only today. Tomorrow will be a new day. But as I mentioned a long time ago when we started Jackson's journey with autism. I am putting it all out there. The good. The bad. The ugly. And I'm here to tell you people - learning with a normal mind is not easy. Learning with autism is an entirely different ballgame because you are down 10 points before you ever start. Retaining the little things that come so easily for the rest of us, is like scaling Mount Rushmore for Jackson when it comes to retaining anything he learns.

Singing my refrain today for sure....

Today. Right now. I HATE YOU AUTISM. How dare you. How dare you keep my sweet Jackson from being able to learn. How dare you make it so hard for him. How dare you always rear your ugly head and make him struggle. 

~EM

A Day I'll Never Forget

Just before the holiday season of 2012, a cloud of sad and somber seemed to linger I think. From the many children and adults in New Town, CT that did not survive the horrible Sandy Hook Elementary school shooting to the fallen police woman here in Memphis, it just seemed like death and sorrow was all around just before the season often referred to as "the most wonderful time of the year" was fast approaching. I'll be the first to admit that I have never had the lifelong dream of becoming a police officer, firefighter or anything involving a uniform for that matter. But I do have the upmost respect for all the people that serve our communities and wonderful country to keep us safe every day of our lives. There will never be enough thank you's or money to justify what those people give so selflessly for the greater good. 

On Friday, December 21, 2012, I was headed out to lunch to meet my hubby and Jackson. As I was driving down Germantown Parkway to meet my boys I noticed two firetrucks parked on both sided of the roads and they were raising the American flag. I wasn't sure if there was maybe going to be a Christmas parade over the weekend or something, so I just went on my way. After lunch I headed back down Germantown Parkway and soon figured out the reason that flag was flying high in the air. Traffic had come to a complete standstill, which isn't and wasn't necessarily a surprise on G'town Parkway, but that Friday it was backed up further than I could see going forward and backwards. As I sat there my first thought was there was a wreck. Ok, 15 minutes later and still hadn't moved. Starting to think it must have been a bad wreck. Then came the lights. 

I then realized what was going on. It was the beginning of the funeral procession for the fallen police woman and mother, Martoiya Lang. I rolled down my window and watched the whole thing. I have never seen so many police officers or longer funeral procession in my entire life. Motorcycle after motorcycle passed along with ambulances  and more unmarked cars than I could count went by. 

The moment was almost surreal. It's was like the whole thing went by in slow motion. People started to put their cars in park, myself included and stand outside to watch the solemn scene that was in a way "parading" by us. 

My mind was blank. All I could think about was a woman that lost her life just a week before, four children that lost their Mommy all too soon and the abundance of tissues I could see through the windows of the officers driving by. Most of them had their windows down. 

                  

As her car passed, the family cars followed behind. At that moment, I could not do a thing but cry. And by cry, I mean balling ugly cry. The moment was so sad and so real I just broke down. And I wasn't the only one. I looked around me and a lot of people were crying. I imagined those four beautiful children in a state of shock and devastation. I couldn't even begin to feel their pain. I was parked on Germantown Parkway for an entire hour before the entire procession passed. I cried the whole time.  Why I feel compelled to share this I have no idea. Maybe it's my way of paying my respects to her? A small thank you for risking her life to serve and protect only to fight the fight she ultimately lost in a terrible way. 

Maybe it was just a good dose of perspective for me? It made me so thankful for my children and my husband and my family. It reminded me that we are never guaranteed tomorrow and that we should really count our blessings every day. I know we all face our own struggles and journeys everyday, just like my sweet Jackson may be facing, but it also reminds me to be thankful that I am here to be a part of that journey and that life is so precious. Somehow all my so called "problems" seemed like nothing that day.  

I hope, pray and wish for the young Mother, officer, Martoiya Lang (who was only 32) to rest in peace and that her children will feel the love and support that I am positive they are surrounded by. 

As the procession ended and I headed back to my office, I saw the American flag flying above the road I had seen on my way to lunch. I saw them take down the flag just as I saw them hanging it up when I first started out to lunch. For some reason it just symbolized to me that everything in our life has a beginning and an end and that time moves so fast, sometimes faster than we want it to. 

Counted my blessings and prayed more times than I could count that day. Rest in peace beautiful lady and thank you for your dedication to serving others. 

Definitely a day I'll never forget...

~EM

(read more of Martoiya Lang's funeral service story here)